 |
|
April 19, 2007
Happy 7th Birthday, Miss Molly!!!!!!
Wow.... this day is so hard to believe! How quickly time flies.
Sorry it's been SOOO long since an update- but no news is good news!
Molly's doing great! She is recovered from her hip surgery so nicely, and is now asking us to go swimming, ride bikes, and go to the park. Prior to her surgery, we'd almost have to bribe her to move like this- just shows how unstable/uncomfortable she must've been, without knowing the difference.
Anyway, it's an absolute pleasure to see Molly moving in any way she can. Speaking of moving, she is playing on a soccer team (the Cubs) this Spring, and John is her coach. First big game is this Saturday- should be fun to watch. Molly is VERY excited!
Molly continues with her therapies on ground and in the pool, and is gaining strength weekly. She'll continue through the summer months, until she starts school in the fall again. We have her IEP meeting coming up in May, but her team at Westgate has already told us they're recommending Molly "make the leap" out of the special needs program into a regular 1st grade classroom!!! We are so proud of her- what a dream come true. Molly continues to do well in both schools she attends this year, and we are really pleased that all her hard work has paid off. She will have an aide next year (personal vs. classroom aide is still to be determined) to help her with certain areas.
Our annual trip to Duke this year proved to be a good one... Molly did great on all of her testing- everything seems to look super, from all perspectives. She is still 100% engrafted, and has normal levels of the enzyme she was missing at birth. Her hearing is also normal, but she's a bit farsighted, so glasses are on the way. MRI of her brain and ECHO of her heart look stable, and she has no signs of carpal tunnel. We know from our trip to the dentist that Molly will have some work needed in the future (the chemo she received prior to transplant zapped 15 of her adult teeth- yikes.), but for now her teeth look good.
In addition to our appointments, we also were able to visit some very special friends. We went to dinner with Maddy Wigglesworth and her parents, saw our favorite nurses at the clinic and on the BMT ward (sorry we missed you, Andre!), and got a chance to see Molly's kindergarten classmate Emily Holum at clinic. Molly was so friendly and excited to see everyone- we were laughing, as she waved to complete strangers by the end of the week and greeted them with a big "Hello!" Poor thing, all these people remember Molly, but she has no recollection of them. She just assumed, by the end of the trip, that everyone knew her, I guess.
Tonight, we are celebrating Molly's birthday with dinner at Max & Erma's- complete with hot chocolate chip cookies for dessert. On Friday evening, she'll enjoy a family party at our house, and on Sunday, she'll have her "dance party" at the park district with almost 30 girls! Molly has many friends, that's for sure. (She would've invited the entire community if she could have.)
On St. Patrick's Day, Molly got an early birthday present... I took her to see the "Doodlebops Live" in Concert! Oh my- what a blast. Molly is a HUGE fan of the Doodlebops- she cried when the concert ended, because she didn't want to say goodbye to her friends DeeDee, Rooney and Moe.
It was a great day- and she greets them everyday when the show first comes on with, "Hi, guys! I saw you on the stage, remember?"
We continue to be blessed by Molly's life and her positive influence on everyone she meets. Thank you all for your prayers and good thoughts for her through the past 7 years.
Happy Birthday, Molly! We love you sooooo much!!!!!!!
|
|
|
February 2001
